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TOPIC: Spreading the news about HCV generic medication-place for ideas

Spreading the news about HCV generic medication-place for ideas 5 years 2 weeks ago #19440

  • rohcvfighter
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Hi Everybody,

we may see that many Fixhepc users (and a big thank you for them) have been and are active in spreading the good news about the HCV cure based on the generic drugs, therefore I believe it would be a good idea to have a dedicated thread so that anyone who has an idea about how to facilitate the action of spreading the information about HCV generic drugs may contribute with ideas.

So please feel free to post your ideas here :) !!

Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
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Spreading the news about HCV generic medication-place for ideas 5 years 2 weeks ago #19442

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in the last couple of days, in a separate thread, there was a discussion about e-mail signatures and slogans.
So far we collected 2 pitches that might be used as e-mail signatures by whoever wishes to support this action:

Message 1 (@dr. Freeman: thank you for the message as well as for the tips ;-) )
Don't become a Hepatitis C statistic. Get treated with affordable generic medication and rediscover what it feels like to be well again. Generic medications are identical copies of effective medicines, but carry a far lower price tag. In a world where half of all HIV patients take generics, why is it that less than 1% of the 180 million HCV patients worldwide been able to access the new miracle cures? Imagine how good you will feel to be free of Hep C. Google for "generic hep c medication" to find the facts. Sharing this post could save someone's life, so please help spread the word and share this with your friends

Message 2
500.000 people unnecessarily die every year because of HCV. The cure exists as branded and generic medicines and the worldwide mass treatment of HCV patients is the key for making the world free of Hepatitis C! Generic medications are identical copies of effective medicines, but carry a far lower price tag. In a world where half of all HIV patients take generics, why is it that less than 1% of the 180 million HCV patients worldwide been able to access the new miracle cures? Imagine a world free of HCV and with millions of lives being saved. Google for "generic hep c medication" to find the facts. Sharing this post could save someone's life, so please help spread the word and share this with your friends
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
Last Edit: 5 years 2 weeks ago by rohcvfighter.
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Spreading the news about HCV generic medication-place for ideas 5 years 2 weeks ago #19444

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Hi RHF

Here are a few ideas in the pipeline that have been discussed in other threads.

1. Contact newspaper columnists that write on health issues in your area offering them details on generics and real people that are taking them and getting cured. I have contacted several from the Boston Globe briefly outlining my story with Hep C and generics, along with medical evidence (my blood work) showing amazing results with LFT''s normalizing and huge viral load drop post four weeks after generics tx. No response yet but it's only been 2 days.

2. I am having a few of Doc Freeman's published work on generics printed out and will offer them as reading material at public health centers where folks without insurance go to get help. (With permission of local staff)

3. Same as number 2, only the audience would be AA and NA meetings. Place info near the coffee and donuts :) that are offered at most meetings. (With permission) And also include your hep c story as part of your addiction story if and when you speak at these meetings. Not applicable to all, but for addicts as myself AA/NA meetings are incredibly supporting environments to share at.
Cheers
Cheese
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Since Late 60's
Meds Cipla SOF/LED
Start June 7, 2016
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Spreading the news about HCV generic medication-place for ideas 5 years 2 weeks ago #19480

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YOUTUBE videos with subtitles in your native language

Adding a subtitle in your own native language to a youtube video and having it published on youtube in your country increases the chances that one of your compatriots will see it.

There are now quite many videos on Youtube talking about generics for HCV. Many are available in English, so you may chose one that you consider relevant.

Couple of tips:
- check the video's licensing terms
- you may add a subtitle by using the caption option from Youtube or embed the subtitle in the video (the free tool Windows Movie Maker is very easy to learn and use).
- you need an youtube account
- usually, the work to embed the subtitle for 1 minute video requires about 10-15 minutes, depending on your language skills and ability to type. So for a 10 minutes video you will work about 2-3 hours.
- on youtube you may add additional information about the video material and its content, but make sure you are not exagerating nor posting info that are against Youtube rules (false info, discrimination, etc) as it might lead to the video being removed (possibly also other consequences for breaching the rules).

Advantage: videos are very convincing, so you need to make sure that the translation is of a good quality

Disadvantage: the videos are not so much visualized ( like the news from an online website) but hey, if at least one single person will use the information from the video in finding the way to get treated from HCV, you may still call it a BIG WIN.

Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
Last Edit: 5 years 2 weeks ago by rohcvfighter.
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Spreading the news about HCV generic medication-place for ideas 5 years 1 week ago #19696

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Hi all,

We can also add information/translate this page into our native languages en.wikipedia.org/wiki/Buyers_club

HP
Nishkama Karma
Cùng nhau loại bỏ Viêm gan C trên khắp thế giới!
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Spreading the news about HCV generic medication-place for ideas 4 years 11 months ago #20956

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An idea inspired while watching the olympic games in Rio 2016 and the RESPECT badge that the referees wear during football games:
- in many cities worldwide there exist different open competitions, like swimming x km, running x km for a certain cause where normal people are invited to participate.

- what if the people who join/participate would be asked whether they would agree to wear a sticker like "generic HCV drugs = a cheap ticket to life. By wearing this sticker you might save the life of an HCV patient". When asked about their agreement, the participants could receive a 1 printed page containing the EASL press release from this year.

I would tend to believe that people doing sport regularly would be willing to do something good for the humankind.

I try to imagine how nice would it be to see such a movement in many cities around the world.

Well, that's just an idea, but perhaps it may trigger better ideas..

Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
Last Edit: 4 years 11 months ago by rohcvfighter.
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Spreading the news about HCV generic medication-place for ideas 4 years 11 months ago #20959

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My idea is to get on youtube and when you come across anything about HepC, place information with a link to this website. If patients are interested, they will research and come here. Check out my comment on the one below. I am fathand Robert. Didn't think about showing only the video. Below is my comment or you can go to youtube and see it. Cheers!!

fathand Robert1 second ago
Harvoni is not the answer for everyone. Generics are just as good and total cost for a 12 week treatment is less than $2,000. Go to fixhepc.com for more information. That's right, there is an fda approved clinical trial. It's called Redemption (etrial) you gotta supply your own doctor to order blood tests etc. Check it out, it's available for all countries including the USA. Dr. James Freeman is the name to know. Check out the link minus the period at the end. I didn't want to show a Harvoni video. lol ~Cheers!!


Name of the video is (Hepatitis "C" is Harvoni the answer?) Had to remove the link, didn't want to show the video but I plaster comments like the one above. :)




G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
Last Edit: 4 years 11 months ago by fretboard.
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Spreading the news about HCV generic medication-place for ideas 4 years 11 months ago #20966

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My idea is to contact Gay Podcasters and see if they would be willing to do a show about the issue. Pride 48 podcasts might be a good place to start. www.pride48.com/Shows/1
G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED
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Spreading the news about HCV generic medication-place for ideas 4 years 11 months ago #20969

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Hi Beahavan, that sounds like a great idea. I've had a look at the site but there is no immediately obvious way to pitch the idea to them. Thoughts?
YMMV
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Spreading the news about HCV generic medication-place for ideas 4 years 11 months ago #20976

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I emailed one podcaster, Matthew B, last night. I told him about my situation and asked if he would be interested in the fixhepc story or if he knows of another podcaster who might want to talk about generics. He is a great guy, a writer and a playwright and hopefully will get back to me soon.
G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED
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Spreading the news about HCV generic medication-place for ideas 4 years 11 months ago #20980

Been having a few thoughts on how to spread the word to a large audience and the thing that comes to mind is a viral post, I then recalled a top shelf viral post put up by Dr Freeman



This got me thinking that wouldnt it be awesome if this guy did a rant about Gilead vs Generics :woohoo:
SVR 24
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Spreading the news about HCV generic medication-place for ideas 4 years 11 months ago #20981

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Hi Tina,

Haha, yeap, that might really work quite impressively :).

I am trying to imagine how challenging it would be to place a translated subtitle on the video :d.

How can this guy be contacted ;-).

Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
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Spreading the news about HCV generic medication-place for ideas 4 years 11 months ago #20982

Hi Roh

It would detonate all over the internet :woohoo:

Ive gone to you tube to have a look and I cant see any information as to who this guy is. Im going to post a comment asking who he is and his email address....you never know your luck.
SVR 24
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Spreading the news about HCV generic medication-place for ideas 4 years 11 months ago #20983

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That's a great idea.

This is the original,



And this is him: en.wikipedia.org/wiki/Felonious_Munk

And this is his website: www.munkcomedy.com/bio/

And this is his Facebook page: www.facebook.com/FeloniousMunkComedy/

And this is his Twitter page: twitter.com/@felonius_munk

I've pitched him @ munkcomedy.com via the contact form.
YMMV
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Spreading the news about HCV generic medication-place for ideas 4 years 11 months ago #21006

One line could be..

"Dude! are you F'n serious? $96000 dollars for some pills that cost you guys less than a dollar to make - I mean Ive been ripped off but you guys take it to a whole new level- you mother f%*kers must have soooo much cash that you use it to wipe yo arse when you have a dump".
SVR 24
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