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TOPIC: Cirrhosis and Resistant Hep C - New Symptoms are they serious?

Cirrhosis and Resistant Hep C - New Symptoms are they serious? 10 months 2 weeks ago #28479

  • barry666
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I had a test the other day and I have an appointment on Tuesday with Anne my nurse who you spoke to a couple of weeks ago. Ill get her to provide me with all results dating back to pre treatment as well as the one I had the other day then get them up here on the forum. Out of interest and for my own education what category on the tests do I look at? Interested if anyone has an opinion on the fingers issue as well.

ciao

g
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 10 months 2 weeks ago #28483

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That's one nice looking cemetery G, these guys did a really nice job. All the best on your upcoming results.
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 10 months 1 week ago #28491

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Dr James.

Sorry about the delay in getting these results uploaded.

g
Attachments:
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 10 months 1 week ago #28492

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Hi Barry,

So your

ALT has fallen = less liver damage
INR fallen = liver making clotting factors better
Bilirubin fallen = liver clearing toxins better
AFP is low = no liver cancer
Platelets have risen = less portal hypertension and splenomegaly due to less inflamed liver

That all looks great!
YMMV
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 10 months 1 week ago #28493

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Thanks for deciphering the hieroglyphs for me Dr James!

g
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 10 months 6 days ago #28497

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Hi Barry666,

Thanks for sharing the article about the Taranaki cemetery. It must have been a lot of work but it looks beautiful. Those results look pretty good too. #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 8 months 1 hour ago #28615

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Hi there.
I had my bloods taken the other day so I should know the verdict next week sometime, after which Ill post an update here. Trying not to get the Armageddon virus but our service has been deemed essential work so I have to occasionally go to check in on some of our people who are getting affected by the isolation. Very strange to communicate to people standing at their front door whilst I sit in a vege garden or backed up into a hedge.
On a not so funny note I got some xrays of my fingers which have been locking up and aching for a few months now. I get psoriasis in small patches here and there on my skin which came up quite rampantly during the antiviral treatment I finished some months ago but the x-rays showed that I have psoriatic arthritis. I understand its an immune system issue and you can treat it but not cure it. I want to get the doc to prescribe something for it but I would like your opinion on what would be safe taking into account the current state of my insides.
Hope you are all well!
g
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 7 months 3 weeks ago #28624

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There are quite a number of options, and to a degree they are all "suck it and see" in that some work great for some patients and not so great for others.

The full list is here: www.mayoclinic.org/diseases-conditions/p...eatment/drc-20354081

We would usually start with methotrexate but that might not be the best idea in you. As you can see there are stacks of options and it's really something best managed by a rheumatologist. Not only do they have expert skills in this area they are also allowed to use stuff GPs are not.
YMMV
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 6 months 4 weeks ago #28668

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Hi.

Just a quick update. I had my blood test for end of treatment viral load about 4 weeks ago but testing for covid 19 has been the priority for labs recently. Unsure as to how long it will take for the results but Ill post them when they appear.

Hope everyone is well and happy.

Take care

g
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 6 months 2 weeks ago #28689

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Hi all and a special shout out to Dr James...

My test results made their way through the queue of covid 19 samples finally and I have been informed that I have cleared the virus from my system. My Hepatology nurse rang me to let me know this and its still not quite sunk in yet.
I really want to thank you all for putting up with me and some of my dark and pessimistic posts on the forum, and your efforts to keep me positive about the chances of destroying the virus and especially during the horrible effects that the meds delivered up to me as side effects.
In particular, I want to thank you Dr James for extending your generosity in making the treatment possible for someone who had no hope in hell of paying for the drugs and had resigned themselves to coping with the deterioration of body and schooling up on how to best cope with that.
You are a legend to me Dr James and have helped me to again believe that their are some good people in the world who make positive changes in peoples lives.
Again thank you for helping me. I will now be able to more effectively and for a greater period into the future, help those who are suffering with the thoughts that lead to suicide and help them back from the brink or look after them after they entered the embrace of darkness but survived.
again this is us and what we do: www.taranakiretreat.org,nz. If you are in NZ and know someone that needs our non-clinical but enbracing support, or if you yourself cant climb out of a dark hole, reach out to us through the website above.
I will be lurking on the forum and website and hope to be able to have some input here if needed

my unfathomable gratitude and respect to you all

g

This is the correspondence I received from my test if it is any use to you at all:


Patient Details

Patient Name: PITCAIRN, GORDON A

NHI No: BAK7206

Date of Birth: 18-Aug-1971

HCV PCR RNA: <15 not detected

Copy To:CC Doctors: MADISON, BHAKTA.

Ordered by:CAMPBELL WHITE

Laboratory:

Observation date:08-May-2020
Last Edit: 6 months 2 weeks ago by fixhepc.
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 6 months 2 weeks ago #28690

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That's amazing news Gordon, you did it #woohoo!

Yes it was quite tough on you, but it was all worth it in the end.

You're a good guy and you help a lot of people, that's why you found people like Dr James to help you.

Enjoy your new Hep C free life :)
Last Edit: 6 months 2 weeks ago by Mar.
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 6 months 2 weeks ago #28691

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Hi Gordon,

Thanks for your kind words. The timing is good. Currently, I'm dealing with a patient complaint where the complaint is basically that the patient did not like me telling them there was nothing wrong (despite the fact history has proven that to be the case) and that their self-diagnosis from Google was incorrect. It's weird - on the one side we have life and death disease where help is appreciated. On the other we have hypochondriacs wasting their time by writing, and far more of my time by having to answer baseless complaints.

Failing the only government-funded treatment first time around must have been shattering. It's been a honour to be in a position to help you get the job done second time around.

Please enjoy this video:

Last Edit: 6 months 2 weeks ago by fixhepc.
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 6 months 2 weeks ago #28700

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Hi Barry666,

I'm catching up with posts and just read about your wonderful results. Such good news after a really difficult path for you. #flower

I'm also involved in suicide prevention and suicide bereavement support across the pond from you. Dr James and the fixhepC crew have fixed us so that we can pay it forward in some way. So pleased for you Barry666....make sure you look after you while you are looking out for others. #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Cirrhosis and Resistant Hep C - New Symptoms are they serious? 6 months 1 week ago #28708

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Hi Coral.
Tough work but totally worth it right? Good to hear you are in the thick of it too. Dr James is a legend and gave me hope when I had zero.
Keep it up!
g
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