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TOPIC: Treatment Data Collection

Treatment Data Collection 5 years 6 months ago #1935

When people are on hepC drug trials through the hospital, their treatment data is recorded for the drug companies.
With so many people going the hepC generic way, won't this data be lost ?
Male aged 66, contracted hepC 45 years ago
Failed treatment interferon and Ribavarin 2003
Started treatment 22 October 2015, 24 week, Dr Freeman
Sofosbuvir and Ledisbovir plus 12 weeks Ribavirin
Geno 1a
Fibrosis F3/4
VL <12 at 4 weeks
VL - negative at 12 weeks
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Treatment Data Collection 5 years 6 months ago #1939

  • LondonGirl
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Isn't that the idea of Dr F's Redemption trials?
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Treatment Data Collection 5 years 6 months ago #1950

  • DrJames
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There are many data points you can record. We will primarily record GT, fibrosis, medications, duration and results @ VL4, SVR4, SVR12.

The goal is simply to answer the question "If I have this GT and this level of fibrosis, what do I take, for how long, to get the best chance of cure?"

Are there any other questions that need answering?
YMMV
Last Edit: 5 years 6 months ago by DrJames.
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Treatment Data Collection 5 years 6 months ago #2281

  • tweakmax
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I am being treated with generics and monitored by a doctor in a government hospital

my data will be recorded in the government system.
Last Edit: 5 years 6 months ago by tweakmax.
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